50 Years Ago

In the shadow world between life and death, the young girl could hear voices coming from afar. One voice sounded urgent, the other placating. The woman with the child must wait her turn.

“This child needs to see a doctor urgently”, a man interrupted. “You go first. Take my spot”, he said to the stricken woman.

A locum was on this week, a doctor that neither mother or daughter had seen before. They had been to the clinic a number of times already this month. The little girl was normally interested in adult conversations, but not this time. The child could barely keep her eyes open or sit up. “Can you do a wee for me?” the doctor asked the listless child. “I don’t feel like it”, the little girl responded, giving lie to her mother’s assertions about the child’s constant thirst and need to urinate.

The doctor turned to my mother. “I know a pediatrician in Parramatta. I’ve rung his office and he will see you as soon as you get there. Go straight there. Don’t delay”, he said.

The woman was relieved that someone was finally taking her seriously. She propped up the lolling child on the front seat of the car. Her daughter’s breathing was shallow. The mother’s gut wrenched with fear.

******

They finally arrived at Dr Vines’ rooms. The woman carried her daughter into the doctor’s rooms. The child was light as a feather, barely there, barely conscious. They were quickly ushered in.

The doctor’s office was bathed in a warm, golden light, afternoon light, and the air smelt of leather. Doctor and mother exchanged some preliminary information but there was scarcely any time for the mother to sit down before the doctor was helping her to her feet again. “Your daughter has Type 1 diabetes”, he said. He seemed to know that without examining the child. The child exuded a sickly sweet smell. “She’s very ill. You must take her to the hospital straight away, the Royal Alexandra Hospital for Children in Camperdown. I could call an ambulance to take her but that will take too long. Drive to the main entrance. The emergency team will be waiting for you there.”

The woman started to panic. She was alone with a dying child and a long journey ahead on unfamiliar roads in busy traffic.

******

The doctor was as good as his word. There were people waiting for the woman as she pulled in. “You go find a park”, another doctor said to my mother, as they whisked me away. “We are taking your daughter straight to Intensive Care. We will meet you there.”

******

I recently asked my mother about the events of that day and the days after. I wanted to know who my doctor was, what date I was diagnosed, etc. “Why do you want to know all this stuff, Trace?” she asked. “I can’t remember. I don’t want to remember. I thought you were going to die in my arms in the car, and in hospital, we didn’t know if you were going to make it.”

I replied that I needed to know this information because it was 50 years ago that I was diagnosed with Type 1 diabetes and I wanted to apply for the Kellion Victory Medal. Apart from my family, saving the planet and a cure for Type 1 diabetes, the Kellion Victory Medal is the only thing I’ve really wanted in my life. All Australians who have been living with diabetes for 50 years or more are eligible for the Kellion Award.

The Kellion Victory Medal was the idea of Dr Alan Stocks, who first put a proposal for the award to Diabetes Australia. For a brief time, at another very shitty time of my diabetes life in the 1980s, I was a patient of Dr Stocks. I was in my early 20s at the time. Dr Stocks was one of the few endocrinologists I’ve really liked, although I do recall liking Dr Vines very much. Dr Stocks told me about the Kellion Medal for those who made it to the 50 year mark. I also remember him saying that I should try to find myself a nice husband because it could save my life. This seemed a pretty odd thing to say to a 20 year old. I think he said that because he attributed his remarkable success in managing his own Type 1 diabetes to his beloved. Apparently there is now also a Kellion Award for carers, and rightly so.

Anyway, Diabetes Australia apparently needs some corroborating evidence, including a date of diagnosis, which of course, I don’t have. The only thing I have is my story. I know I was diagnosed in 1972. Between the two of us, my mother and I figured out that my diagnosis was probably later in the year, because I have photos of a very chubby me in the 1971/1972 summer, while towards the end of the year, photos show that I was very thin. Sometime in 1972, I caught measles and then was diagnosed with Type 1 diabetes shortly after that. I believe my specialist’s name was Dr Robert Vines. I can still remember the smell of his office. It is probably not enough information, but I sure would like that award.

As my mother said to me recently, “You know, Trace, we didn’t have Dr Google in those days. No-one knew anything about diabetes. I had no-one. It was frightening.”

Once again, my father was pretty useless, but that’s another story.

Thank goodness that impressive young locum was on that day. Thank goodness for Dr Vines.

Choose Your Own Poison

Tracy (front) and her sister riding Lightning,1972
An image flickers like an old home movie across the screen.  
A young girl stands by an open fridge door drinking thirstily from a large bottle of Passiona.  A woman, her mother, appears in the background and chastises her daughter for drinking too much soft drink.  Too much Passiona.  Always Passiona.

"Drink water," the child's mother says.
But the child doesn't stop. 

Images flicker alternately between the child vomiting violently, and drinking from the bottle of Passiona, before vomiting again.  The child becomes thinner and thinner.  
Images of the wasting child flicker faster until she is nothing but a wisp of fetid Passiona air,  translucent and ephemeral as she drifts in and out of consciousness.

When I was a small girl, I lived on a rural property on the outskirts of Sydney. Every week, the soft drink man would deliver a crate of syrupy, carbonated drinks to the property. They were supposed to be a treat, but I couldn’t get enough of them. My favourite was a passionfruit-flavoured fizzy called Passiona. In the 50 years since I was diagnosed with Type 1 diabetes, I have always craved carbonated fizzy drinks on those rare occasions when my blood glucose levels have been seriously high. It is worth noting that I became a Type 1 diabetic in the months after I recovered from a serious bout of the measles. Isn’t it fortunate that there are now vaccines to protect against many serious viruses that can trigger our immune systems to go into hyper drive and attack our own bodies?

The (optional) task for Day 14 of National Poetry Writing Month (NaPoWriMo) is to write a poem/piece that takes the form of the opening scene of the movie of your life.

There’s more to this movie, but this is a start.

Take care, everyone.
Kind Regards.
Tracy.

NaPoWriMo #14
Ragtag Daily Prompt – Changeling

,

We Shall Decide When You Shall Return To The Office

Welcome to my regular Friday song/tune day, ladies and gentlemen, where I pick a piece of music that reflects my mood or the times, to share with you.

Unfortunately, I’ve had a really shit week. I accidentally got my Covid booster shot during the week. I had a doctor’s appointment late one afternoon and they had vaccine doses left over so they offered me one and I accepted. Gee, the fizzer shot raises your blood glucose level, doesn’t it? My BG has been all over the shop. The day after my shot, I was high all day so I decided to walk that blood sugar down. I felt really good when I started out. That should have been a warning sign. With the pump cannula in my leg (I know, stupid), the intramuscular insulin and exercise slammed me down pretty fast. I started to stagger when I reached my street on my way home. I don’t know why I didn’t stop to drink my Lucozade when I felt the hypo symptoms. Too far gone and too stupid, I guess. But I only had a few hundred metres to go, so I pushed on. I made it to our bin when my legs started to collapse under me. I then somehow made it to the front steps. I don’t know how long I was outside, clutching on to the railing, but by the time I was discovered, I was covered in mosquito bites. I remember whispering, “Help me. Help me.” Very pathetic. My True Love has a sixth sense about these things and he found me on the stairs.

Read more

Things That Go Bump In the Night

I know I’m a little late to the party, but that’s the story of my life.  The party I mean is World Diabetes Day 2019 on 14 November.  The theme this year is Diabetes and Family.  I haven’t written anything to celebrate but I thought I would share this old post.  It is kind of horrifying, and I confess that I most worry about criticism from my fellow Type 1 diabetic peers because they seem to have their diabetes s..t together so much better than I do.  But that is just an assumption on my part.  Anyway, this is not about me.  My family deserve a medal for putting up with me.  They are the unsung heroes.  The second theme of this post is about not jumping to conclusions.  I’ve tried to make it funny as well.  It is okay to laugh.  So, here goes (again). Read more

Horse Tales

A long time ago in a land far away, my True Love and I had a big adventure.  It was on our European backpacking tour of ’91.  While we were in Ireland, we decided we would lash out (spend up big) and take an organised day tour of Killarney National Park.  Our mode of transport was horse and cart, and then dinghy for the return across Loch Léin to Ross Castle (I hope I’ve got that right.  It was such a long time ago).  For the more intrepid traveler, there was the option of riding a horse.  Now I’m not that intrepid but I used to be a good rider, so I chose to ride.  My True Love wisely chose to travel by cart. Read more

On The Straight And Narrow

Last night, I thought I might write a very important post.  Then I chickened out.  But now …. oh well, here goes.

I don’t do drugs.  Never have.  I have had too many “hypos” (low blood glucose episodes), which are themselves quite trippy.  Some good.  Some bad.  So I stay well clear of them — drugs, not hypos, which is somewhat harder to “do”.  I don’t even drink alcohol anymore.  The most I’ve ever drunk was three glasses of wine.  You know, when in France … as you do. Read more

Election Priorities – Government Funding for Continuous Glucose Monitoring

Aussie Readers, given the escalating rate of new Government policy and funding announcements, it will come as no surprise to you that a Federal election is imminent and judging by the nature of the announcements to date, the result of the next election is expected to be a close one.  Am I the only Australian woman still menstruating that considers the recent announcement exempting sanitary products from the Goods and Service Tax a stunt?  Some estimates put the saving to each woman at less than $10 per year.  But I suppose the more you bleed, the more you save.  Let’s not forget that GST revenue goes to State Governments anyway, so it is not like they are giving anything away.  I am being facetious but you get my drift.  Never let it be said that the Coalition has a woman problem.

If I had my way, I would rather see the Government commit to further emission reductions.  I don’t think anyone outside of Government seriously believes Australia is going to meet its Paris emissions reduction target based on current policy settings.  If I can’t have that, and apparently I can’t, I would like to relieve some of the day to day stress of living with Type 1 diabetes. Read more

No Such Thing as Typical for a Type 1 Diabetic

WordPress Daily Word Prompt – Typical

I don’t like to write about my experience with Type 1 diabetes because it is all just s?/* really.  The point is no day is typical.  Let me explain just a little.

We do have a lot of new tech.  Little devices that can help with day-to-day management and identifying trends.  So that is great.  But then, life, hormones, illness, inaccuracy in product labels (for carb counts), exercise, the time of day, diet, insulin resistance, etc, affect results; so much so that I find it difficult to say what my blood glucose levels typically are when asked by some doctors.  My answer is always that it depends.  I often get the you-should-know-better look.

graph

During the first 20-30 years of my having this condition, doctors would often blame me for my unpredictable results.  There is greater understanding now among the medical profession that perfect control is unachievable for most.  There is less of the blame game.  Thank goodness.

I’m grateful for the new tech.  I really am.  But the device companies and insulin manufacturers (many of whom fund research efforts) have a vested interested in maintaining the status quo.  It’s business as usual.  I’m over it.

What do I want?  Real innovation – a cure.  When do I want it?  Now.

PS. For all those low-carbers out there that think that low-carb is the way to flat lines, sure it helps.  But it is not a panacea, certainly not for middle-aged women like me.

Comments welcome.  Can’t find the Comments Section?  Keep scrolling.