WordPress Daily Word Prompt – Typical

I don’t like to write about my experience with Type 1 diabetes because it is all just s?/* really.  The point is no day is typical.  Let me explain just a little.

We do have a lot of new tech.  Little devices that can help with day-to-day management and identifying trends.  So that is great.  But then, life, hormones, illness, inaccuracy in product labels (for carb counts), exercise, the time of day, diet, insulin resistance, etc, affect results; so much so that I find it difficult to say what my blood glucose levels typically are when asked by some doctors.  My answer is always that it depends.  I often get the you-should-know-better look.

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During the first 20-30 years of my having this condition, doctors would often blame me for my unpredictable results.  There is greater understanding now among the medical profession that perfect control is unachievable for most.  There is less of the blame game.  Thank goodness.

I’m grateful for the new tech.  I really am.  But the device companies and insulin manufacturers (many of whom fund research efforts) have a vested interested in maintaining the status quo.  It’s business as usual.  I’m over it.

What do I want?  Real innovation – a cure.  When do I want it?  Now.

PS. For all those low-carbers out there that think that low-carb is the way to flat lines, sure it helps.  But it is not a panacea, certainly not for middle-aged women like me.

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19 thoughts on “No Such Thing as Typical for a Type 1 Diabetic”

  1. Such a terrible disease! I have only a small understanding of how you have to live your life: controlled by the disease, everything impacts on it. You’re so right about the companies having a vested interest in maintaining the status quo…I’d never thought about it in that way before. Fingers crossed for a cure!

    Liked by 1 person

    1. Thank you for the comment, Linda. It don’t think it controls me because that is the nature of the condition. I keep trying but I don’t seem to get anywhere. But it certainly defines me. It affects every aspect of my life. But there are worse things that could happen to me, so Iife goes on. 🙂

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  3. I can’t begin to imagine what it must be like to have to deal with illness all day, every day. I admire your tenacity and grit.

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  4. It’s amazing with all those dogs that you haven’t been cured, but I hae heard that Type I Diabetes is a very tenacious and unresponsive illness. ❤ The idea of being "defined by" vs. "controlled by" an illness is, I think, right on. I saw that with my dad and MS, I have experienced myself with arthritis.

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    1. Thanks Martha, for the acknowledgement around controlled versus defined by. People seldom admit they are defined by their disease, but it is has such a pervasive impact that the term just seems to fit. It is not necessarily pejorative. It just is. MS and arthritis are good examples of that.

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      1. I have to acknolwedge that as much as I’ve hated and have been depressed by the last year or so of increasing limitation, it’s also been a teacher. I’m deeply, deeply grateful for the lesson. It changed me for the better. Humility in the face of nature is a good, honest stance, possibly that’s wisdom. 🙂

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  5. Thank you for sharing your experience to what you have been battling, what you have been taking what you have to take. I have psoriasis since my childhood and even now its dominating on my both hands, which I had not been able to take it in me life long until recently. This is a kind of immune disorder and I tried many things to cure but I could not get away and I despaired number of times in life. It certainly impacted in building my characters in my teenage period too. With minimal knowledge, I understand that Type I is harder than Type II which I would imagine it has been impacting huge part of your life. I respect you of your toughness keeping up. I had often made myself refused to accept as to what I have and get a long, but I have a feeling and I was given bravery to get my chin up. Thank you.

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    1. Thank you for commenting Makiko, and telling me about your psoriasis. How painful that must be. Yes, keep your chin up. When I feel down, it is more difficult to manage my diabetes. Stress affects it too. Maybe it is the same for psoriasis? If so, we must continue to do the things we enjoy. That makes life a little easier. Type 1 is an autoimmune disease. Type 2 is difficult to manage too – just a different kind of difficult.

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      1. Yes it is same that the pain psoriasis brings me down like diabetes does to you, but therefore as you say, we must explore and continue to focus on what we enjoy!😊. Let’s rock’n’ roll👍

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    1. Hello RC, thanks for popping in. I don’t write much about my T1 experiences. I’m just a little too angry about it. You think I would have something nice to say after living with it for nearly 50 years. I will have a look your blog too. It’s nice to focus on other things, isn’t it? You may like my post Things That Go Bump in the Night. It’s kind of funny. And kind of not. 🙂 Stay in touch. Regards. Tracy.

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